Showing posts with label Alzheimer’s. Show all posts
Showing posts with label Alzheimer’s. Show all posts

Monday, 8 April 2019

Nik Nak’s Daily Teaser — 8-4-2019: Auguste’s Alzheimer’s

8th April, 2019.


Yep: I’ve got a man coming over: to fix my cupboard!

Well … I say cupboard … 

A couple of days ago, now, the door came off the cupboard housing my boiler: managing to land on my head, in the process.

That hurt: but hasn’t seemingly done much damage.

But?   It’s something that left me with a boiler, peeking over the top of the door.


Which looks a bit odd.

At any rate … ?

I’ve reported it to my landlord.

Who’ve got a repair man heading over, today: between eight and one.

The only downside?

I have to stay in to let the bloke in.

I’m going to get cabin fever, aren’t I … ?

~≈§≈~

Friday, 8 February 2019

Nik Nak’s Daily Teaser — 8th February, 2019.

8th February, 2019.

Quick: have a look at the intro video … !


Right … 

That’s the official announcement.

I’m doing a charity appeal on FB, for my birthday: on behalf of the Alzheimer’s Society.

As you may or may not know, the condition — or a variety — killed my grandma.   And my favourite author.

So when Facebook’s automated system threw up the idea of doing an appeal — to mark my birthday, next month — it seemed like a good idea … 

And — as far as I was concerned? — there was only one choice of charity.


Feel free to donate, if it’s something that concerns you: either via the Facebook page I’ve set up, or directly through the link.


It’s a good cause that I suspect many of us are familiar with … 

~≈§≈~

Sunday, 12 February 2017

Back in Black

12th February, 2017.

You know, I felt I should maybe write.

Which is a little non-specific, I know.

I could be writing a lot … 

A poem …  a song … a teaser … 

All sorts of things.

But I wanted something known.

~≈⚰≈~

Thursday, 1 September 2016

Nik Nak’s Daily Teaser — 1-9-2016

Hmmm … 

That could be good news … 

You’re — possibly — aware I’m a long term fan of writer, Terry Pratchett.

And one who not only saw Alzheimer’s Disease kill both his favourite writer, and a much loved grandmother.

So … ?   As you can imagine, I’m not a fan of the condition.

And usually keep an eye on news about the condition.

News came in, yesterday: that the early studies of a new drug — Aducanumab — seem to show it has had very good results on a group of 165 patients.

I know the drug’s in it’s early stages.

I’m VERY aware it comes too late for both my grandmother, and Sir Terry.

But … ?

I can only hope this is a good sign.

Alzheimer’s may not be curable.

But this drug, if it can be shown to work well?

Sounds like a very good treatment.

~≈Ê≈~

Wednesday, 8 April 2015

The Daily Teaser — 8-4-2015

Oh, well, that’s THAT done … !

You’ve probably known — for some time — that I’m a fan of writer, Sir Terry Pratchett.

His recent death was something that saddened me, deeply: especially as he’d died from Alzheimer’s, a condition that complicated my grandmother.

I’m looking forward to The Shepherd’s Crown, his last novel: it get’s released in September.

With a certain amount of sadness: I, as every other fan, won’t be able to get it autographed.

Saying that … ?   Saying that, I’ve been keeping my eyes on Discworld Monthly, over on Facebook.

And several people have managed to change they message alert tone to the Bingley Bingley Beep noise used by the Dis-organisers owned by Sir Samuel Vimes.

Something I’ve done myself.

I might have to change that.

I can see why Old Stoneface get’s annoyed … … 

~≈Â≈~

Thursday, 12 March 2015

Sir Terry Pratchett — 28 April 1948 to 12 March 2015: Oh … Fuck … 

Yes … 

I know … 

I don’t USUALLY swear in title of a post, here on Nik Nak’s Old Peculiar.

No, really … 

But I’ve just LITERALLY got home from my mothers.

I’ve been mowing her lawn, today, so you know.

There’s ALSO very few days when a piece of news makes me feel physically sick.

Today’s the day both happened.

Today is the day Sir Terry Pratchett — Alzheimer’s sufferer, Assisted Death campaigner, writer, ex-journalist, former publicity man for three nuclear generators, and, frankly, my literary hero — died.

And believe me, writing the word ‘died’ is possibly the most hideous word I can imagine writing.   And the most difficult.

Today, Terry Pratchett died.

And, right now … ?

I, along with many others, feel as if I’ve lost a friend.

~≈®≈~

Friday, 4 July 2014

The Daily Teaser — 4th-July-2014: Independence Day

You know, I’ve had something of a roller-coaster week: emotions going up and down, to match the various bits of good and bad news I’ve received.

I had another unwelcome bit, last night: although not one that affected me, directed.

I’m a Terry Pratchett fan.

So the news, a few years ago, that he’d been diagnosed with a form of early-onset Alzheimer’s Disease touched me, deeply.

As was his involvement in the Right to Die campaign.

~≈Î≈~

Thankfully — or possibly not — the progress of his condition has been slow.

Although, having lost a grandmother to the condition, I’ve always felt that, with each screened interview, I could see the effects of the condition digging in.

There was news from The Guardian, yesterday: Terry’s had to cancel an appearance at an up-coming convention.   Something he’s never had to do, before.

I’m definitely not happy.

And can’t help but wonder this.   When will he be taking this option.

~≈Î≈~

Thursday, 3 July 2014

Terry Pratchett: The Embuggerance … 

You know, I’ll possibly have to write this up, later: when I know more.

But I’ve just seen this piece from The Guardian float past.

Terry Pratchett, my favourite author, and a man whose work I’ve followed for some time, has had to pull out of the biggest Discworld convention on the planet.

As a result of the slowly increasing effects of the version of Early Onset Alzheimer’s was diagnosed with.

~≈Í≈~

Wednesday, 11 December 2013

The Brentwood Gazette’s Weekly Teaser

Well, that’s a thing … 

As I speak … ?

Well, as I speak, I’ve got the BBC’s News Channel on.

Which is covering the fact that there’s a G8 summit about Alzheimer’s Disease.

Personally … ?

Well, I’m a Terry Pratchett fan: one who saw a much loved grandmother die of the condition.

Hopefully, the promised doubling of funding that PM, David Cameron has announced, will do some good.

But I’m VERY aware that it’s going to take some time … 

~≈∑≈~

At any rate, today’s Wednesday.

Which means, obviously, that it’s the Brentwood Gazette’s publication day: and, therefore, time for the Gazette’s weekly teaser.

Here’s this week’s questions, covered by the Creative Commons License* …
Q1) 11th December saw Bill W, one of AA’s founders, finally stop drinking.   In which year of the 1930s?
Q2) What did the W stand for … ?
Q3) More to the point, what does AA stand for … ?
Q4) The group takes its name from its main text, used to help members achieve sobriety.   The book is nicknamed … what … ?
Q5) Bill W cofounded AA with Dr Robert Smith: known to many AA members as Dr … what … ?
Q6) The group was founded in Akron: in which US state is Akron … ?
Q7) The group famously has how many steps … ?
Q8) What name does AA give to someone who talks a newcomer through the Steps … ?
Q9) One of AA’s offshoot groups helps drug addicts, and is called NA.   What does NA stand for … ?
Q10) Finally … when going through that final treatment, Bill W was treated with a drug made from which beautiful woman?
If you’re concerned about your drinking you can contact AA on 0845 769 7555 or help@alcoholics-anonymous.org.uk
You can also contact Alcohol Concern’s Drinkline on 0800 917 8282.
Here’s last week’s questions and answers …
Questions.
Q1) 4th December saw the first and last studio meeting of legends, Elvis Presley, Jerry Lee Lewis, Carl Perkins and Johnny Cash.   In which year of the 1950s?
Q2) The impromptu jam session was held in at Sun Studios: in Memphis.   In which US state is Memphis … ?
Q3) The four were informally referred to as the what Quartet … ?
Q4) Which of the Quartet was famed for his — rather theatrical — piano playing style … ?
Q5) At the time of writing, in late October, who is the only Quartet member still alive … ?
Q6) All four members of the Quartet recorded a version of ‘Blue Suede Shoes’.   Who wrote and recorded the original?
Q7) What was Elvis’ first UK hit: ‘Heartbreak Hotel,’ ‘Don’t Be Cruel’ or ‘Hound Dog’ … ?
Q8) Johnny Cash’s 1968 live album was recorded where … ?
Q9) Elvis Presley and Jerry Lee Lewis were the only two quartet members to have UK № 1s in their lifetime.   Elvis had 17.   What was Jerry Lee’s only UK UK № 1?
Q10) Finally … Perkins, Cash and Lewis recorded their ‘Class of ’55’ album, partly as a nod to Elvis, in 1986.   With who?
Answers.
A1) 1956.
A2) Tennessee.
A3) The Million Dollar Quartet.   (And wouldn’t you just KILL for the master tapes … ?)
A4) Jerry Lee Lewis.
A5) Him again: Jerry Lee Lewis.
A6) Carl Perkins.
A7) Heartbreak Hotel’.   (Which, famously, was based on newspaper coverage of a man’s suicide note.)
A8) Folsom State Prison.
A9) Great Balls Of Fire’.
A10) Fellow Sun Studios veteran, Roy Orbison.
Enjoy those.

I’ll catch you later … 





















*        Regulars will know already, but for newcomers … all it means is that you’re free to copy, use, alter and build on each of my quizzes: including the Teasers, Gazette Teasers and the Friday Question Sets.   All I ask in return is that you give me an original authors credit on your event’s flyers or posters, or on the night: and, if you republish them, give me an original authors credit AND republish under the same license.   A link back to the site would be appreciated.

Wednesday, 22 August 2012

BBC News - Right-to-die man Tony Nicklinson dead

The Late Tony Nicklinson

Oh … 

Now that’s sad …

You’re probably aware that I’ve been keeping an eye on various people’s campaigns on the right to die, over the years: or Assisted Death, as Terry Pratchett has called it.

I have to admit, it’s something I still feel ambiguous about: but I’d been following Mr Nicklinson’s efforts to arrange a High Court ruling to have a doctor help him to die.

One that, only a short while ago, failed.

Something I felt vaguely saddened about: but felt could, with a touch more work, could be remedied.

Saying that … ?

Saying that, I was renewing a book, today, at Brentwood Library.   And, using their computers to check on my Twitter account, I saw this tweet from Channel Four’s news service …
That grabbed my attention, obviously.

And saddened me, as well.

Tony Nicklinson, much like Winnie Johnson a few days ago, died without being able to finish his fight.

And that’s as much of a tragedy as anything else.

Monday, 21 May 2012

Alzheimer’s Awareness Week

I have to make a quick confession, here.

And something of an appeal, as well, before I head out.

I’m something of a Terry Pratchett fan, as you’re probably aware.

And also had a much loved grandmother who was deeply affected by dementia/Alzheimer’s.

So, listening to Radio 4, this morning, and finding out it’s Dementia Awareness Week in England, Northern Ireland and Wales, this week, grabbed my attention.

At least, grabbed it enough to prompt me to tell you about it.

AND to let you know that the Alzheimer’s Society is having something of a fund raiser about it.

AND that they’ve issued  a whole pile of video’s on YouTube.

Just so you know, you can make a UK donation, here.

AND you can also watch the video’s through the embedded video, below.

Please give donating a thought.

Going by the statistics Radio 4 handed out?

40% of us will have a relative affected by it at some point.


Monday, 26 March 2012

BBC News - Dementia research funding set to rise to £66m by 2015




You know, my long term readers will probably be very aware that I’m a long term Terry Pratchett fan, and have been for some time.

I’m also someone who’s seen a much loved grandmother die, after suffering with Alzheimer’s Disease for many years.

So … ?

So catching the above news — that the government is to double the amount of funding put towards Alzheimer’s — is a good thing.

I personally wish it had come a few years earlier, but none the less, it’s still something to be welcomed.

However …

I’m ALSO aware that, during the recent budget — last Wednesday, so you know — saw a HUGE uproar about the Granny Tax: the reduction in personal allowances for pensioners.

Knowing the age group that Alzheimer’s usually targets … ?

I can’t help but think that someone has been thrown a bone, to make up for losing that money.



Wednesday, 24 August 2011

Sir Terry’s Gone To Iceland

Which is possibly a bit of a strange title, I know.

But to be honest, there’s a method in my madness.

Or, at least a vague attempt a logic of some description.

(Says I, now my router’s stopped playing up … ! DRATTED thing … !)

At any rate … ?

Well, at any rate, I’ve got to admit, I actually went shopping this morning.

To one or two places, if you must know, but usually … ?

I usually go to the Brentwood branch of Iceland, at some point, as they usually do a nice range of cut price frozen food.

Well …

Niceish, let’s put it that way …

And Iceland, like many shops, does the occasional charity fundraising drive.

The one they’re doing at the mo caught my eye.

You’ve probably realised, by now, I’m a Terry Pratchett fan, and that I, like many of his fans, was devastated to hear of his Alzheimer’s Disease.

Especially in view of the fact my grandmother had died from the condition.

So I was rather pleased to see that my local Iceland …

Was having a charity fundraiser for Alzheimer’s Research.

Now, it’s not often I cough up cash for charity: and, frankly, I couldn’t even afford a strip of tickets for the raffle they were organising.

Which is a shame, the TV was rather impressive!

But at any rate … ?

I thought I’d mention it, here.

You’ve got ’til Friday, which is when they’re stopping it.

If you’ve some spare cash and would like to give to a good cause … ?

Well …

Wednesday, 15 June 2011

Sir Terry Pratchett: More on Choosing to Die … 

OK …

I know that’s maybe not the most dignified shot of Terry Pratchett.

But, as he put’s it, in Soul Music … ?
What duck?
Hmmm …

OK …

Yes …

Let’s get moving onto the more serious point I was going to try and make.

Or, at least, tell you …

You see, I managed to see Terry Pratchett: Choosing To Die, the other night.

And powerful stuff it was, too.

But I’m ALSO very aware that I’d keep my eyes open on other articles on the subject doing the rounds …

For starters …

Well …

According to this piece … ?

He feels making the film was a good thing.

And … ?

That he’s already put the procedure in motion

»»·««

Monday, 13 June 2011

Terry Pratchett: Choosing To Die.


You know …


I think I’ve just seen one of the more moving pieces of TV I’ve seen in a long time.

Hmmm …

»»·««

Now, you’ve guessed — after regularly following this blog — that I’m a Terry Pratchett fan.

You probably couldn’t miss the fact, could you … ?

And, like many who’ve followed his work, I’m very aware that, a couple of years ago, Sir Terry was diagnosed with a form of Early-onset Alzheimers, called Post-Corterior Atrophy.

Definitely an upsetting thing to see.

Not only is Sir Terry a favourite writer — and one I feel I’ve come to know and love, after first reading The Colour Of Magic, all those years ago — but he’s also been diagnosed with a version of a disease I’d seen kill a much loved grandmother.

Alzheimer’s.

I was gutted.

I still pretty much feel the same way.

His announcement, a few years ago, that he was seriously keen on what’s been variously called ‘Assisted Death’, euthanasia or just plain Assisted suicide … ?

Was definitely one that shook me.

It still does.

Very much so.

You see, I am very scared of death.

I don’t think I know that many people who aren’t, to be frank.

And, unlike one or two more devoutly religious people I know, I’ve no particular faith — not even a political one, or philosophical position, on the lines of Buddhism or Secular Humanism — to reassure me of a hereafter to help ease that fear of mine.

So …

Well, I think it’s understandable that I’m uncertain of how I’d be in Sir Terry’s shoes: suffering a condition I know — from having seen how it affected Grandma Smith — is capable of robbing me of all that I am.

Even given that various people I’ve known have been able to argue convincingly both for and against.

Believe me, I’m sympathetic, trust me.

Boy, I’m sympathetic.

I’m just still not convinced that an assisted death — or even a Do Not Resuscitate order on my medical notes — is something I’d like.

I may not have much of a life, at the moment.

But I think I’d prefer it, to being dead, frankly, whatever condition.

»»·««

However … ?

There’s a reason this messy and controversial subject has reared its head, though …

You see, Sir Terry has just been in a documentary, on BBC 2, called Terry Pratchett: Choosing To Die.

He’s followed two people — Peter, a Motor Neurone sufferer and Andrew*, a young MS patient — as they mad the decision to go to Switzerland, to make use of the Dignitas assisted death clinic, in Schwerzenbach.

And I’ve got to admit …

This is a tricky one to write, I’m hoping you’ll be patient with me, here … !

I’ve got to admit, seeing the mother of Andrew, the MS sufferer, admitting that she respected her son’s decision to die the way he had was extremely moving: and watching her anger that this was not something they could have done here in Britain was …

Well …

Not a revelation, per se.

Moving, yes …

But not revelatory.

And something that made sense.

Equally as moving … ?

Possibly even more so … ?

Was the death of Peter, the Motor Neurone sufferer, recorded — with he and his wife’s permission — and broadcast, with Sir Terry following them all the way through, from the initial visits by the Dignitas doctor to his death, in the presence of Peter’s wife, Sir Terry, the two escorts from Dignitas.

And you.

And me.

And everyone else watching, tonight.

»»·««

Hang on, let me just make a cuppa …

And take a very deep breath.

»»·««

These were …

Moving.

Definitely moving.

In both the simplicity of Peter and Andrew’s decisions: and both the strength of them.

And the bravery in making them.

Not something I think I could do.

»»•««

Those decisions, to make that trip to Switzerland … ?

With all that that implies … ?

I’m thinking that those two mens decisions to make that trip to Switzerland, are decisions I think have to be respected, even though it’s a decision I don’t think I could make for myself.

Or want to make for myself.

And it’s also one that leaves me asking a question.

Why on Earth is that Swiss journey necessary … ?

Oh, I’m not asking why we can’t cure things like MS or Motor Neurone Disease, or properly eliminate other conditions, like them, and Alzheimer’s.

No.

While I may not wish to make that decision for myself, or see any of my family make it …

I also believe it’s one that people should be able to make.

And not have to make things worse for their families …

By having to travel abroad to die at a time of their own choosing.

The one thing I did discover … ?

Is that, in Belgium, assisted death is legal for Belgian nationals: and Belgian nationals, only.

Given the amount of grief travelling abroad does to surviving families facing a loved one’s wish to die like this — I saw that, in this documentary — why the HELL is it not legal for British citizens to die, by their own hands, and in a time of their own choosing, at home … ?





* Radically young, in fact: he was my age, when he died … That is scary …

Thursday, 7 October 2010

News For Alzheimer’s Sufferers … With a few less important Bits

I’ve got to admit, I thought I’d best post up some news I’ve picked up from the BBC, today.

As you’re probably aware, some years ago saw the death of a much loved grandmother.

From complications of Alzheimer’s, so you know.

So, given that, and the fact I’m something of Terry Pratchett fan, I tend to follow news about both Alzheimer’s Disease and the various debates about Assisted Death.

Scary stuff, that last one.

But, at any rate, one good thing for any currant or future sufferers of the condition … ?

Is that the National Institute for Clinical Excellence — or NICE for short — has finally U-turned, and approved the general release of drugs — including Aricept — for use in the early stages of the condition.

Damn good news, that …

|»•«|

But before I sign off … ?

Before I sign off, I’ll leave you with a video …



Thursday, 21 January 2010

Footing the Ball …

You know, I’ve got to admit, there’s a couple of things I got for Christmas, that I haven’t told you about.

At least, not yet …

I think I’m going to remedy that, now, in telling you about something my Mum picked up for me.

Terry Pratchett’s latest Discworld book, Unseen Academicals.

And I’m …

Well …

Actually, I’ve got to be honest, I’m scrabbling for words, here.

I’m fairly sure I don’t necessarily want to use the phrase, “mixed feelings,” here, but don’t necessarily want to overuse it.

But it is true that that’s kinda the phrase I’m looking for, maybe.

After all, if you’ve been reading my words for a while, you’ll know how I’m something of a fan of Terry Pratchett, so getting Unseen Academicals for Christmas was both a treat, and something I’ve been mildly dreading.

Mildly might even be to mild a word, but let’s stick with that, shall we?

You might be wondering why.

But Terry’s been a favourite author of mine for a very long time, so when the news broke, a while back, that he’d been diagnosed with a form of Early-Onset Alzheimer’s was genuinely devastating: especially as it had — effectively — killed my paternal grandmother, years before she actually died.

So getting this book …

Phew …

Was …

Was …

Hmm …

Something to take slowly …

Which I must confess I did.

The plot sees the Faculty of Unseen University — when confronted by the realisation that they may be about to run out of money for food, unless they honour the terms of a rather BIG bequest — having to face the fact that they’re going to have to do the unthinkable.

Play football …

Added and abetted by by some of the actual ‘below-stairs’ staff of the University: including Glenda and her pies, Juliet — who, during the story, find out she may be the Disc’s greatest living fashion model —, Trevor — tin can kicker, and son of Ankh Morpork’s greatest footballer — and the mysterious Mr Nutt.

Who’s — seemingly — got a lot more going for him, than a talent for dribbling candles.

All this co-incides with the re-discovery of the city’s ancient rules of football, and Lord Vetinari’s attempts to tame the modern version of the game.

•••••

Now, normally, I’d be telling you how much I’ve enjoyed this.

Which I have.

But I’m also very aware — very aware — of the condition he has.

And reading Unseen Academicals, I was very aware of the trouble that writing has been giving him. There are times, Unseen Academicals reads a look like one of his earlier Discworld novels. And possibly one were he was still learning to be the writer we’ve come to know and love, today.

There’s also moments where he seemed — to me — to be genuinely struggling with his condition.

Choices of words, times when established characters seem out of kilter, times when the plot seems to be drifting a touch …

And there’s times when he’s still on form.

Especially when the gang from UU are concerned.

•••••

It just seems a shame to me, that I feel I can tell Alzheimer’s seems to be starting to affect him.

Saying that, however, I do know that that may well simply be the fact that he’s finding it difficult to to actually concentrate on the physical aspect of writing this entry in the Discworld series: he has, from what I can gather, been forced to rely on some fairly extensive dictation software to get the book done: and I think that’s possibly showing.

•••••

And I think that’s why I’m feeling a touch confused about Unseen Academicals.

The scars from the demon’s fangs are starting to show.

But I’m also very aware that he’s still fighting it …

⌘⌘⌘